{"id":586,"date":"2020-09-09T22:23:28","date_gmt":"2020-09-09T22:23:28","guid":{"rendered":"https:\/\/nprc-swfl.com\/als-more-work-to-do\/"},"modified":"2022-02-25T18:35:18","modified_gmt":"2022-02-25T18:35:18","slug":"als-more-work-to-do","status":"publish","type":"post","link":"https:\/\/nprc-swfl.com\/es\/als-more-work-to-do\/","title":{"rendered":"ELA: M\u00e1s trabajo por hacer"},"content":{"rendered":"<p>El neur\u00f3logo franc\u00e9s Jean-Martin Charcot descubri\u00f3 la esclerosis lateral amiotr\u00f3fica (ELA). Originalmente, conoc\u00edamos la ELA como la enfermedad de Charcot en honor a su descubridor. Sin embargo, en junio de 1941, se la conoci\u00f3 como la enfermedad de Lou Gehrig cuando <a href=\"https:\/\/www.lougehrig.com\/biography\/\">miembro del Sal\u00f3n de la Fama<\/a> Se retir\u00f3 del b\u00e9isbol poco despu\u00e9s de su diagn\u00f3stico. No existe cura para la ELA, por lo que debemos seguir investigando para encontrar tratamientos efectivos para esta enfermedad mortal. Contin\u00fae leyendo para obtener m\u00e1s informaci\u00f3n sobre la ELA y las investigaciones que se est\u00e1n realizando para ayudar.<\/p>\n<h2><b>\u00bfQu\u00e9 es la ELA?<\/b><\/h2>\n<p>La ELA afecta las c\u00e9lulas nerviosas del cerebro y la m\u00e9dula espinal, causando p\u00e9rdida del control muscular. Es una enfermedad progresiva que comienza con dificultad para hablar, espasmos musculares y debilidad en una extremidad. Con el tiempo, la ELA afecta los m\u00fasculos necesarios para comer, respirar, movernos y hablar. Normalmente, no hay dolor en absoluto.\u00a0<a href=\"https:\/\/www.mda.org\/disease\/amyotrophic-lateral-sclerosis\/signs-and-symptoms\/stages-of-als\">escenario<\/a>La vejiga y los sentidos no se ven afectados. La ELA es mortal y la mayor\u00eda de las personas viven de 3 a 5 a\u00f1os despu\u00e9s del diagn\u00f3stico. Sin embargo, algunas personas viven diez a\u00f1os o m\u00e1s.<\/p>\n<h2><b>Lo que el Ice Bucket Challenge hizo por la ELA<\/b><\/h2>\n<figure class=\"tmblr-full\" data-orig-height=\"594\" data-orig-width=\"396\"><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter\" src=\"https:\/\/64.media.tumblr.com\/7ffe2bba03be61c0385b26cfc59df5d9\/2972721afab86113-05\/s540x810\/35fa4417928bc000c86f03c9103c078e95772f09.jpg\" alt=\"ALS Bucket Challenge\" width=\"272\" height=\"408\" data-orig-height=\"594\" data-orig-width=\"396\" \/><\/figure>\n<p>&nbsp;<\/p>\n<p>Hace cinco a\u00f1os, el\u00a0<a href=\"https:\/\/www.als.org\/stories-news\/ice-bucket-challenge-dramatically-accelerated-fight-against-als\">\u201cEl reto del cubo de hielo\u201d<\/a> Revolucion\u00f3 el mundo y catapult\u00f3 la financiaci\u00f3n para la investigaci\u00f3n de la ELA a nuevas cotas. Este aumento de financiaci\u00f3n ha acelerado el ritmo de los descubrimientos, ha permitido a la fundaci\u00f3n destinar m\u00e1s fondos a los investigadores y ha allanado el camino para la creaci\u00f3n de una de las mayores fuentes de datos de secuenciaci\u00f3n del genoma completo de la ELA. Desde entonces, los investigadores han vinculado cinco nuevos genes con la ELA.<\/p>\n<p>Los tratamientos para la ELA se centran en el alivio de los s\u00edntomas y en ralentizar su progresi\u00f3n. Desafortunadamente, nada puede revertir el da\u00f1o causado por la enfermedad. Si bien la FDA cuenta con dos tratamientos aprobados para la ELA, a\u00fan queda trabajo por hacer para encontrar terapias m\u00e1s efectivas y, eventualmente, una cura. Los estudios de investigaci\u00f3n cl\u00ednica tienen la responsabilidad de llenar el gran vac\u00edo generado tras la ELA.<\/p>\n<figure class=\"tmblr-full\" data-orig-height=\"555\" data-orig-width=\"555\"><img decoding=\"async\" class=\"aligncenter\" src=\"https:\/\/64.media.tumblr.com\/2623ccf40c6eb9e804eed58febdb1058\/2972721afab86113-ae\/s540x810\/c0ecfbf7ec1cca6c9dc466f316ca06fd95505979.jpg\" alt=\"A good support system is key for those with ALS\" width=\"335\" height=\"335\" data-orig-height=\"555\" data-orig-width=\"555\" \/><\/figure>\n<p>Si usted o un ser querido ha sido diagnosticado con ELA, los pr\u00f3ximos estudios de investigaci\u00f3n podr\u00edan ser una opci\u00f3n. Para obtener m\u00e1s informaci\u00f3n, visite nuestro sitio web.\u00a0<a href=\"https:\/\/www.joinaresearchstudy.com\/our-research-facilities\/woodland-research-northwest\/studies\/#!\/study\/80\">sitio web<\/a>.<\/p>\n<p><b>Referencias<\/b>:<\/p>\n<p><a href=\"https:\/\/www.als.org\/understanding-als\/lou-gehrig\">https:\/\/www.als.org\/understanding-als\/lou-gehrig<\/a><\/p>\n<p><a href=\"https:\/\/www.als.org\/stories-news\/ice-bucket-challenge-dramatically-accelerated-fight-against-als\">https:\/\/www.als.org\/stories-news\/ice-bucket-challenge-dramatically-accelerated-fight-against-als<\/a><\/p>\n<p><a href=\"https:\/\/www.mayoclinic.org\/diseases-conditions\/amyotrophic-lateral-sclerosis\/diagnosis-treatment\/drc-20354027\">https:\/\/www.mayoclinic.org\/diseases-conditions\/amyotrophic-lateral-sclerosis\/diagnosis-treatment\/drc-20354027<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>El neur\u00f3logo franc\u00e9s Jean-Martin Charcot descubri\u00f3 la esclerosis lateral amiotr\u00f3fica (ELA). Originalmente, la ELA se conoc\u00eda como la enfermedad de Charcot en honor a su descubridor. Sin embargo, en junio de 1941, se la conoci\u00f3 como la enfermedad de Lou Gehrig cuando el miembro del Sal\u00f3n de la Fama se retir\u00f3 del b\u00e9isbol poco despu\u00e9s de su diagn\u00f3stico. No existe cura para la ELA, lo que nos deja\u2026 <\/p>\n<p class=\"read-more-container\"><a title=\"ELA: M\u00e1s trabajo por hacer\" class=\"read-more button\" href=\"https:\/\/nprc-swfl.com\/es\/als-more-work-to-do\/#more-586\" aria-label=\"Leer m\u00e1s sobre ELA: M\u00e1s trabajo por hacer\">Leer m\u00e1s<\/a><\/p>","protected":false},"author":1,"featured_media":710,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[102,15],"tags":[104,103,61],"class_list":["post-586","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-als","category-clinical-trials","tag-als-research","tag-amyotrophic-lateral-sclerosis","tag-blog","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-50"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ALS: More Work to Do 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